1 %
Of people have a rare disease
1 %
Of Rare Diseases are Genetic
1 %
Of rare diseases lack an FDA-approved therapy
Engineering Equitable Health Futures
A secure biomedical data network connecting healthcare researchers with diverse patient communities to accelerate research and advance precision care.
Together we are stronger
If you want to go fast, go alone. If you want to go far, go together. We accelerate rare disease research by aligning incentives for fair collaboration at all levels.
Safeguarding what's most important
Our platform is built from the ground up using cutting-edge encryption technology and state-of-the-art data management approaches. Data privacy and security is at the core of our marketplace.
We are driven by values
Our mission is to help relieve human suffering through the creation of a decentralized worldwide network of genomic biobanks that connects biobanks to each other and to researchers. Our core values are connectivity, equity, and privacy.
Let’s work together
If you are a clinical laboratory, sequencing center, or rare disease advocacy group, we’d love to hear from you.